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Wednesday, October 28, 2009

WOO HOO A full nights rest

Well it's been exactly a week since we cut Chris off from all meds and last night was the first full night of rest that all of us have gotten since the hallucinations started. The hallucinations scaled down to night terrors by Saturday night then last night nothing at all. I can't tell you how good that felt (for Chris and his mom and myself).

One of the therapists at St. Jude's showed me how to calm Chris down at night called "healing touch". It is the most simple thing but I just lay my hands on Chris, starting at his feet, hold for two minutes and then move up the body. By the time I reach his shoulders he is asleep. That and the ambien give him a good nights rest. At last something I can do to help him feel better, an easy, wonderful way.

Chris continues to get frustrated with his progress, he wants to be walking yesterday. ( I can't blame him). It is so reassuring when we have a visitor who hasn't seen him in awhile come over and say "hey you weren't doing that last time I saw you". Today as we drove in the car he was able to clasp his hands together easily and he commented that last week he struggled to do it by himself. So every week, every day, baby steps are happening.

Last Thursday my meeting with the lawyer did not go as well as I thought. I assumed (silly me) that I would go in, fill some paperwork out, re-apply for MediCal and be done with this part of the nightmare. Ah but no, the lawyer proceeds to tell me that even if we re-apply for MediCal, it won't be retro active because we were denied the first time. Meaning, no coverage for the accident. I was devastated, cried for the rest of the day. I am going to get on my soap box for a moment. How can a person live here their whole life, pay taxes, contribute to society but be condemned when they need help. But if I were to have arrived here from another country they would give me MediCal. How is this right? I tried to buy insurance and they wouldn't sell it to Chris because of a pre-existing condition. Where is the justice? So this part of our journey is still to be ironed out.

On a happier note, the girls are really excited about Halloween. Regan wants to decorate the house more and more. It's not spooky enough she says. Caitlin is going to be a USC cheerleader, surprise, surprise, it is SO her. Regan is going to be a lamp, yes, thats right, a lamp. I love her four year old mind. Thanks to Aunt Jenn for creating her costume, light bulb and all.

My love and gratitude to you all,

Christy

4 comments:

  1. "At last something I can do to help him feel better, an easy, wonderful way"

    I believe that if you focus fully on giving love and healing while you do this you will contribute tremendously to Chris's healing. When this kind of work is done with real love then it does not drain you; you will be "refilled" as you work with Chris. So do use this to full potential, preferably doing it when you are able to "sink into it" (immerse yourself fully) without distractions.

    You see, the help you need really is in your own hands! God bless you.

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  2. John Novinger here. Went by Cora's 10/29, but no one was home at your place. re: the wheelchair, contact Joni and Friends (http://www.joniandfriends.org/) and see what they can do to help. They are the group I mentioned to you during the summer.

    "Hi" to Chris. Take care.

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  3. That is UNBELIEVEABLE about medical. So sorry to hear that. Thinking of you two often...

    Katie

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  4. Hi Chris and Christy,
    Sorry I haven't checked in for a while but always know that you are all in my prayers everyday. Ben has kept me updated along with Chris will walk update. Sorry to here about the insurance problems but very happy to hear about Chris' progress.
    God Bless
    Steve

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